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1.
Patient Educ Couns ; 115: 107890, 2023 10.
Artigo em Inglês | MEDLINE | ID: mdl-37437511

RESUMO

OBJECTIVE: To provide recommendations for adequately training healthcare providers in intercultural communication skills. DISCUSSION: We discuss three main recommendations concerning intercultural communication skills training. First, we give an overview of the fundamental skills in which healthcare providers should receive training, such as self-awareness and adaptability. Second, we briefly discuss how such training should be delivered, and focus on different language support methods, including those that work with different types of interpreters and digital tools. Third, we discuss how within-group differences can be taken into account to prevent stereotyping. To illustrate these recommendations, we provide certain examples of existing good practices and interventions. CONCLUSION: In today's superdiverse societies, delivering culturally and linguistically sensitive healthcare tailored to the needs, values, and preferences of individual patients is a prerequisite for good quality healthcare communication. To achieve this goal, there is a need for clearer recommendations for affirmative action, guidelines, policy, and support for the topic of diversity sensitivity in healthcare, such as evidence-based interventions, than is currently the case. That is, structural changes on a system level are urgently needed to support healthcare providers to implement diversity sensitivity in their daily clinical work.


Assuntos
Competência Cultural , Atenção à Saúde , Humanos , Competência Cultural/educação , Idioma , Comunicação , Pessoal de Saúde/educação , Diversidade Cultural
2.
Psychol Methods ; 28(5): 1052-1068, 2023 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-34990189

RESUMO

Recent times have seen a call for personalized psychotherapy and tailored communication during treatment, leading to the necessity to model the complex dynamics of mental disorders in a single subject. To this aim, time-series data in one patient can be collected through ecological momentary assessment and analyzed with the graphical vector autoregressive model, estimating temporal and contemporaneous idiographic networks. Idiographic networks graph interindividual processes that may be potentially used to tailor psychotherapy and provide personalized feedback to clients and are regarded as a promising tool for clinical practice. However, the question whether we can reliably estimate them in clinical settings remains unanswered. We conducted a large-scale simulation study in the context of psychopathology, testing the performance of personalized networks with different numbers of time points, percentages of missing data, and estimation methods. Results indicate that sensitivity is low with sample sizes feasible for clinical practice (75 and 100 time points). It seems possible to retrieve the global network structure but not to recover the full network. Estimating temporal networks appears particularly challenging; thus, with 75 and 100 observations, it is advisable to reduce the number of nodes to around six variables. With regard to missing data, full information maximum likelihood and the Kalman filter are effective in addressing random item-level missing data; consequently, planned missingness is a valid method to deal with missing data. We discuss possible methodological and clinical solutions to the challenges raised in this work. (PsycInfo Database Record (c) 2023 APA, all rights reserved).

3.
J Geriatr Oncol ; 13(6): 862-870, 2022 07.
Artigo em Inglês | MEDLINE | ID: mdl-35589543

RESUMO

BACKGROUND: Due to various socio-cultural and language related factors, healthcare providers experience barriers when communicating with older culturally and linguistically diverse (CALD) patients with cancer, which can lower the quality of care received by patients and negatively impact healthcare providers. Studies focusing on communication barriers of older CALD patients with cancer and a systematic comparison of those barriers between different healthcare providers have been largely missing. OBJECTIVES: In order to lay out the healthcare providers' perceived barriers to communication, the present study identified and compared communication barriers among different healthcare providers when caring for older CALD patients with cancer. METHODS: An online survey was conducted among healthcare providers in the Netherlands who identified as being involved in the care of CALD patients with cancer (N = 191), specifically; GPs (NGPs = 54), specialists (Nspecialists = 29), oncology nurses (Nnurses = 77), and pharmacists (Npharmacists = 31). Providers assessed twelve pre-specified factors on (i) importance and (ii) frequency of these factors as barriers to communication. A composite score by employing the QUOTE (Quality Of care Through the patients' Eyes) methodology was used to rank, and classify factors as either potential or influential barriers. RESULTS AND CONCLUSION: Overall, low Dutch language proficiency of older CALD patients with cancer, family interpreters providing inadequate translations, not knowing the extent of patients' informational needs, cultural differences in views about healthcare (i.e., illnesses and treatments) and family members blocking communication were found to be influential communication barriers. Healthcare providers showed several differences in what they perceived to be a potential or an influential barrier: Cultural differences in views about healthcare and patients getting treatment in their home countries were important barriers for GPs, while not knowing the patient's contact person was for pharmacists. Nurses perceived the highest number of influential barriers, while specialists perceived the least. We conclude that specific interventions that address differences in perceived barriers among providers are needed, and we highlight potential interventions that involve digital communication tools, such as the Conversation Starter.


Assuntos
Pessoal de Saúde , Neoplasias , Comunicação , Barreiras de Comunicação , Humanos , Idioma , Neoplasias/terapia
4.
BMC Cancer ; 22(1): 109, 2022 Jan 25.
Artigo em Inglês | MEDLINE | ID: mdl-35078438

RESUMO

BACKGROUND: Older cancer patients may search for health information online to prepare for their consultations. However, seeking information online can have negative effects, for instance increased anxiety due to finding incorrect or unclear information. In addition, existing online cancer information is not necessarily adapted to the needs of older patients, even though cancer is a disease often found in older individuals. OBJECTIVE: The aim of this study was to systematically develop, implement and evaluate an online health information tool for older cancer patients, the Patient Navigator, providing information that complements the consultation with healthcare providers. METHOD: For the development and evaluation of the Patient Navigator, the four phases of the MRC framework were used. In the first and second phase the Patient Navigator was developed and pilot tested based on previous research and sub-studies. During the third phase the Patient Navigator was implemented in four Dutch hospitals. In the last phase, a pilot RCT was conducted to evaluate the Patient Navigator in terms of usage (observational tracking data), user experience (self-reported satisfaction, involvement, cognitive load, active control, perceived relevance of the tool), patient participation (observational data during consultation), and patient outcomes related to the consultation (questionnaire data regarding anxiety, satisfaction, and information recall). Recently diagnosed colorectal cancer patients (N = 45) were randomly assigned to the control condition (usual care) or the experimental condition (usual care + Patient Navigator). RESULTS: The Patient Navigator was well used and evaluated positively. Patients who received the Patient Navigator contributed less during the consultation by using less words than patients in the control condition and experienced less anxiety two days after the consultation than patients in the control condition. CONCLUSION: Since the Patient Navigator was evaluated positively and decreased anxiety after the consultation, this tool is potentially a valuable addition to the consultation for patients. Usage of the Patient Navigator resulted in patients using less words during consultations, without impairing patients' satisfaction, possibly because information needs might be fulfilled by usage of the Patient Navigator. This could create the possibility to personalize communication during consultations and respond to other patient needs.


Assuntos
Neoplasias Colorretais , Informação de Saúde ao Consumidor/métodos , Sistemas On-Line , Navegação de Pacientes/métodos , Participação do Paciente/estatística & dados numéricos , Idoso , Feminino , Humanos , Masculino , Participação do Paciente/psicologia , Satisfação do Paciente/estatística & dados numéricos , Encaminhamento e Consulta/estatística & dados numéricos
5.
Ethn Health ; 27(5): 1123-1146, 2022 07.
Artigo em Inglês | MEDLINE | ID: mdl-33316171

RESUMO

OBJECTIVES: To gain insight into (1) the unfulfilled instrumental and affective needs of Turkish-Dutch and Moroccan-Dutch older cancer patients/survivors, (2) the barriers perceived by healthcare professionals in fulfilling these needs, and (3) how the Health Communicator, a multilingual eHealth tool, can support the fulfillment of patients'/survivors' needs, and decrease professionals' barriers. DESIGN: We conducted a pre-implementation study of the Health Communicator using semi-structured interviews with Turkish-Dutch (n = 10; mean age = 69.10) and Moroccan-Dutch (n = 9; mean age = 69.33) older cancer patients/survivors, and held two focus groups with general practitioners (GPs; n = 7; mean age 45.14) and oncology nurses (ONs; n = 5; mean age = 49.60). Topic list consisted of questions related to needs and perceived barriers. Analysis was based on grounded theory. The acceptance of the Health Communicator was inquired by questions based on the concepts of the Technology Acceptance Model, and analyzed deductively. RESULTS: Patients/survivors reported unfulfilled needs concerning: (1) information about cancer (treatment), (2) information about the healthcare system, (3) possibilities regarding psychosocial support, and (4) doctor-patient relationship. Among professionals, the main perceived barriers were: (1) patients'/survivors' low health literacy and language barrier, (2) cultural taboo, (3) lack of insight into patients' instrumental needs, and (4) patients'/survivors' lack of trust in Dutch healthcare. Both patients/survivors and professionals thought that implementing the Health Communicator could be effective in fulfilling most of the needs and decreasing the barriers. However, a majority of the patients/survivors were hesitant regarding the use of it, because they found it too difficult to use. Professionals showed a positive intention towards using the Health Communicator. CONCLUSIONS: To enhance patient participation among older migrant cancer patients/survivors, the Health Communicator is, under certain conditions, a promising tool for fulfilling patients'/survivors' unfulfilled instrumental and affective needs and for bridging barriers perceived by professionals.


Assuntos
Neoplasias , Telemedicina , Migrantes , Idoso , Humanos , Pessoa de Meia-Idade , Neoplasias/terapia , Participação do Paciente , Relações Médico-Paciente , Pesquisa Qualitativa
6.
Patient Educ Couns ; 104(10): 2393-2399, 2021 10.
Artigo em Inglês | MEDLINE | ID: mdl-34340845

RESUMO

OBJECTIVE: This study aimed to assess the most influential barriers midwives perceive in communicating about depression-related symptoms with ethnic minority clients. METHODS: In-depth interviews were held with midwives (N = 8) and Moroccan-Dutch women (N = 6) suffering from perinatal depression to identify the most salient communication barriers. Subsequently, an online survey among midwives (N = 60) assessing their perceived barriers and the occurrence of these barriers in practice was administered. Composite scores using the QUOTE methodology were calculated to determine influential barriers. RESULTS: Three types of barriers emerged from the interviews. Educational-related barriers, client-related barriers and midwife-related barriers. Results of the survey showed that the most influential barriers were educational-related barriers (e.g. lack of culturally sensitive depression screening instruments) and client-related barriers (e.g. cultural taboo about talking about depression). CONCLUSION: Culturally sensitive screening instruments for depression and patient education materials should be developed to mitigate the educational-related barriers to communicating about depression. Patient education materials should also target the clients' social environment (e.g. husbands) to help break the cultural taboo about depression. PRACTICE IMPLICATIONS: Based on this study's results, communication strategies to empower both midwives and ethnic minority clients with depression can be developed in a collaborative approach.


Assuntos
Tocologia , Enfermeiras Obstétricas , Comunicação , Depressão/diagnóstico , Etnicidade , Feminino , Humanos , Grupos Minoritários , Gravidez
7.
J Med Internet Res ; 23(7): e23670, 2021 07 05.
Artigo em Inglês | MEDLINE | ID: mdl-34255657

RESUMO

BACKGROUND: Today, many cancer patients engage in online health information seeking (OHIS). However, little is known about how patients differ in their OHIS levels. In addition, OHIS might influence patient participation during a consultation with a physician, which might mediate the effects on patient outcomes. OBJECTIVE: The aim of this study is twofold: first, to provide insight into which personal characteristics and psychosocial factors affect patients' OHIS levels and, second, to test the hypothesis that the effects of OHIS on patient outcomes are mediated by patient participation during the consultation. METHODS: Patient participation was operationalized in terms of patients' absolute word count; the relative contribution of the patient, compared with the health care provider; and the number of questions and assertions expressed during the consultation. The patient outcomes measured were anxiety after the consultation, satisfaction with the consultation, and information recall. Participants in this study were patients recently diagnosed with colorectal cancer recruited from 6 hospitals in the Netherlands (n=90). Data were collected using questionnaires and audio-recorded consultations of patients with health care providers before their surgery. RESULTS: The results showed that younger patients, higher educated patients, patients with a monitoring coping style, and patients who experienced more cancer-related stress engaged more in OHIS. In turn, OHIS was related to patient participation in terms of the patient's absolute word count but not to the relative contribution to the consultation or expressing questions and assertions. We did not find a relation between OHIS and anxiety and OHIS and recall mediated by patient participation. However, we found that patients' absolute word count significantly mediated the positive association between OHIS and patients' satisfaction with the consultation. CONCLUSIONS: Results indicate positive implications of OHIS for patients' care experience and, therefore, the importance of helping patients engage in OHIS. However, the results also suggest that OHIS is only successful in increasing a single aspect of patient participation, which might explain the absence of relations with anxiety and recall. The results suggest that more beneficial effects on patient outcomes may be achieved when health care providers support patients in OHIS.


Assuntos
Comportamento de Busca de Informação , Satisfação Pessoal , Ansiedade , Comunicação , Humanos , Participação do Paciente , Satisfação do Paciente , Relações Médico-Paciente , Encaminhamento e Consulta
8.
J Med Internet Res ; 22(10): e21238, 2020 10 26.
Artigo em Inglês | MEDLINE | ID: mdl-33104008

RESUMO

BACKGROUND: Older migrant patients with cancer face many language- and culture-related barriers to patient participation during medical consultations. To bridge these barriers, an eHealth tool called Health Communicator was developed in the Netherlands. Essentially used as a digital translator that can collect medical history information from patients, the Health Communicator did not include an oncological module so far, despite the fact that the prevalence of Dutch migrant patients with cancer is rising. OBJECTIVE: This study aims to systematically develop, implement, and conduct a pilot evaluation of an oncological module that can be integrated into the Health Communicator to stimulate patient participation among older Turkish-Dutch and Moroccan-Dutch patients with cancer. METHODS: The Spiral Technology Action Research model, which incorporates 5 cycles that engage key stakeholders in intervention development, was used as a framework. The listen phase consisted of a needs assessment. The plan phase consisted of developing the content of the oncological module, namely the question prompt lists (QPLs) and scripts for patient education videos. On the basis of pretests in the do phase, 6 audiovisual QPLs on patient rights, treatment, psychosocial support, lifestyle and access to health care services, patient preferences, and clinical trials were created. Additionally, 5 patient education videos were created about patient rights, psychosocial support, clinical trials, and patient-professional communication. In the study phase, the oncological module was pilot-tested among 27 older Turkish-Dutch and Moroccan-Dutch patients with cancer during their consultations. In the act phase, the oncological model was disseminated to practice. RESULTS: The patient rights QPL was chosen most often during the pilot testing in the study phase. Patients and health care professionals perceived the QPLs as easy to understand and useful. There was a negative correlation between the tool's ease of use and patient age. Patients reported that using the module impacted the consultations positively and thought they were more active compared with previous consultations. Health care professionals also found patients to be more active than usual. Health care professionals asked significantly more questions than patients during consultations. Patients requested to see the patients' rights video most often. Patients rated the videos as easy to understand, useful, and informative. Most of the patients wanted to use the tool in the future. CONCLUSIONS: Older migrant patients with cancer, survivors, and health care professionals found the oncological module to be a useful tool and have shown intentions to incorporate it into future consultation sessions. Both QPLs and videos were evaluated positively, the latter indicating that the use of narratives to inform older, low-literate migrant patients with cancer about health-related topics in their mother tongue is a viable approach to increase the effectiveness of health care communication with this target group.


Assuntos
Neoplasias/terapia , Migrantes/estatística & dados numéricos , Design Centrado no Usuário , Feminino , Humanos , Internet , Masculino , Pessoa de Meia-Idade , Neoplasias/epidemiologia
9.
Patient Educ Couns ; 2020 May 08.
Artigo em Inglês | MEDLINE | ID: mdl-32423835

RESUMO

Due to ongoing globalization and migration waves, healthcare providers are increasingly caring for patients from diverse cultural and/or ethnic minority backgrounds. Adequate health communication with migrants and ethnic minorities is often more difficult to establish compared to people belonging to the majority groups of a given society, because of a combination of language and cultural barriers. To address this topic, in December 2018 a symposium was organized-under the auspices of the Amsterdam Center for Health Communication-during which speakers from both academia and professional practice discussed the current state-of-the-art and brought forward innovative solutions to improve intercultural communication in healthcare. Main questions that were discussed during this symposium included: "How can language barriers in intercultural health communication be mitigated?" and "Which innovations can contribute to improving intercultural health communication?" In this paper, we discuss some answers to these questions and propose that in order to enhance intercultural communication and healthcare for migrant and ethnic minority patients, a more holistic approach to studying when, how, and for what purposes (a combination of) communication strategies should be utilized in mitigating both language and cultural barriers to decrease health disparities and improve health care for migrant and ethnic minority patients.

10.
Patient Educ Couns ; 103(6): 1216-1222, 2020 06.
Artigo em Inglês | MEDLINE | ID: mdl-32098743

RESUMO

OBJECTIVE: This study explores how patients with Inflammatory Bowel Disease (IBD) and nurse practitioners (NPs) in the Netherlands communicate about online health information-seeking. METHODS: We analyzed 165 consultations of patients at the start of maintenance treatment using grounded theory. Consultations in which the words; internet, website, Google, Googled, webpages, online (forum/blog/platform) or a website was mentioned, were included. Segments were identified and analyzed that represented a discussion about online health information-seeking (n = 87). We coded the initiator, initiation and reaction communication strategy. RESULTS: Half of the sample was female, most patients were moderately to highly educated and aged on average 48 years. One third of the consultations included a discussion about online health information-seeking. Seventeen communication initiation and reactions strategies were identified. Patients and NPs were equally as likely to initiate a neutral discussion about online health information-seeking. Patients repeatedly reacted with disclosing their concerns. NPs responded by taking patients' online health information-seeking seriously or affirming patients' beliefs. CONCLUSION: This exploration makes a unique contribution by demonstrating that NPs particularly adopt a patient-centered communication style while communicating about patients' online health information-seeking. PRACTICE IMPLICATIONS: Results of this study could guide interventions to train providers in talking about patients' online health information-seeking.


Assuntos
Doenças Inflamatórias Intestinais , Profissionais de Enfermagem , Idoso , Comunicação , Feminino , Humanos , Doenças Inflamatórias Intestinais/terapia , Comportamento de Busca de Informação , Internet , Pessoa de Meia-Idade , Países Baixos , Educação de Pacientes como Assunto , Inquéritos e Questionários
11.
East Mediterr Health J ; 24(12): 1165-1171, 2019 Feb 18.
Artigo em Inglês | MEDLINE | ID: mdl-30799556

RESUMO

BACKGROUND: Breast cancer is the leading cause of death among women aged 20-59 years worldwide, with 58% of deaths occurring in less-developed countries. In the Islamic Republic of Iran, breast cancer constitutes 21% of all cancers, with an incidence rate of 22 per 100 000 women. AIMS: Since research into breast cancer screening among Iranian women is scarce and results are contradictory, we aimed to explore women's' perceptions regarding breast cancer screening behaviour and provide insights into how breast cancer is perceived and approached. This could aid policy-makers in drafting effective interventions to stimulate women to perform regular screening. METHODS: We used the Health Belief Model as a theoretical framework. In-depth interviews with 22 women in Tehran were performed, based on a topic-list exploring the 6 constructs of the Health Belief Model: perceived barriers, perceived severity, perceived susceptibility, perceived benefits, self-efficacy and cues to action. Data-analysis was based on the Constructive Grounded Theory Method. RESULTS: The main barriers were fear, low priority and cultural values. Perceived severity was low for the majority of women, while perceived susceptibility was high for about half of them. Perceived benefit of screening was high for all women. Women's' self-efficacy was low when it came to breast self-examination. Talking about breast cancer screening and having somebody in their environment adopting screening behaviour were important cues for taking up breast cancer screening. CONCLUSIONS: Interventions should focus on diminishing barriers and increasing women's' self-efficacy and interpersonal communication about breast cancer screening.


Assuntos
Neoplasias da Mama/diagnóstico , Conhecimentos, Atitudes e Prática em Saúde , Adulto , Neoplasias da Mama/epidemiologia , Autoexame de Mama , Detecção Precoce de Câncer , Feminino , Comportamentos Relacionados com a Saúde , Humanos , Incidência , Entrevistas como Assunto , Irã (Geográfico)/epidemiologia , Programas de Rastreamento , Pessoa de Meia-Idade , Autoeficácia
12.
Patient Educ Couns ; 102(4): 631-650, 2019 04.
Artigo em Inglês | MEDLINE | ID: mdl-30594322

RESUMO

OBJECTIVE: To provide an overview of information and participation preferences and needs of non-Western ethnic minority cancer patients living in Western countries. METHODS: A systematic literature review was conducted using the databases PsycINFO, PubMed, CINAHL, and EMBASE. Thematic analysis was carried out to synthesize data, allowing for identification of important themes and synthesis of both qualitative and quantitative studies. RESULTS: Forty-four papers were included. Non- Western ethnic minority cancer patients/survivors have high information preferences and needs regarding topics ranging from diagnosis to treatment and from prevention to the healthcare system. Younger, female, and unmarried patients/survivors, and patients with better language proficiency reported higher information preferences. Latin-American and African-American patients/survivors primarily prefer shared or active participation. Asian and Middle-Eastern patients/survivors prefer primarily passive participation. Younger patients, and those with a higher level of education and acculturation were more likely to prefer active or shared participation. CONCLUSION: Further (quantitative) research on factors associated with patients' preferences is needed in order to better understand the underlying reasons of information and participation preferences and needs of diverse non-Western ethnic minority cancer patients. PRACTICE IMPLICATIONS: To better fulfil ethnic minority patients'/survivors' preferences and needs healthcare providers should elaborate upon these and tailor their information- provision accordingly.


Assuntos
Sobreviventes de Câncer/psicologia , Tomada de Decisões , Etnicidade/psicologia , Grupos Minoritários/psicologia , Neoplasias/etnologia , Neoplasias/terapia , Participação do Paciente/psicologia , Preferência do Paciente/etnologia , Grupos Raciais/estatística & dados numéricos , Negro ou Afro-Americano , Asiático , Comunicação , Etnicidade/estatística & dados numéricos , Feminino , Hispânico ou Latino , Humanos , Masculino , Grupos Minoritários/estatística & dados numéricos , Neoplasias/psicologia , Preferência do Paciente/psicologia , Relações Médico-Paciente , Grupos Raciais/psicologia
13.
Health Commun ; 34(12): 1469-1481, 2019 11.
Artigo em Inglês | MEDLINE | ID: mdl-30040497

RESUMO

Previous research has shown that ethnic minority patients participate less during medical encounters than patients from majority populations. Given the positive outcomes of active patient participation, such as higher understanding of information and better treatment adherence, interventions are required to enhance ethnic minority patients' participation levels. However, little is known about what patients perceive as barriers hindering their participation. This study therefore aimed to explore differences in perceptions of barriers to patient participation among ethnic minority and ethnic majority patients in general practice. Eight focus-groups with Turkish-Dutch and indigenous Dutch participants were performed. A semi-structured topic-list concerning patients' enabling and predisposing factors to participate, and physicians' responses guided the interviews. Interviews were recorded, transcribed verbatim, and transcripts were analyzed using the constant comparison method described in Grounded Theory. Regarding Turkish-Dutch patients' enabling factors to participate, two perceptions of barriers were identified: (i) low Dutch language proficiency; (ii) a preference for an indirect communication style. Three perceptions of barriers to Turkish-Dutch patients' predisposition to participate were identified: (i) collectivistic values; (ii) power distance; (iii) uncertainty avoidance. Regarding doctors' responses, discrimination was identified among Turkish-Dutch patients as a perception of barrier to their patients' participation. None of these perceptions of barriers emerged among indigenous Dutch patients. This study contributes to our understanding of which perceptions of barriers might impede ethnic minority patients' level of patient participation. To enhance their participation, a combined intervention is needed, tackling the language barrier, raising awareness about cultural differences in values, and increasing doctors' cultural competencies to communicate adequately with ethnic minority patients.


Assuntos
Barreiras de Comunicação , Características Culturais , Etnicidade/estatística & dados numéricos , Participação do Paciente , Preconceito , Adulto , Feminino , Grupos Focais , Humanos , Masculino , Países Baixos , Turquia/etnologia
14.
Patient Educ Couns ; 101(6): 1058-1065, 2018 06.
Artigo em Inglês | MEDLINE | ID: mdl-29402573

RESUMO

OBJECTIVE: The aim of this observational study was twofold. First, we examined how often and which roles informal interpreters performed during consultations between Turkish-Dutch migrant patients and general practitioners (GPs). Second, relations between these roles and patients' and GPs' perceived control, trust in informal interpreters and satisfaction with the consultation were assessed. METHODS: A coding instrument was developed to quantitatively code informal interpreters' roles from transcripts of 84 audio-recorded interpreter-mediated consultations in general practice. Patients' and GPs' perceived control, trust and satisfaction were assessed in a post consultation questionnaire. RESULTS: Informal interpreters most often performed the conduit role (almost 25% of all coded utterances), and also frequently acted as replacers and excluders of patients and GPs by asking and answering questions on their own behalf, and by ignoring and omitting patients' and GPs' utterances. The role of information source was negatively related to patients' trust and the role of GP excluder was negatively related to patients' perceived control. CONCLUSION: Patients and GPs are possibly insufficiently aware of the performed roles of informal interpreters, as these were barely related to patients' and GPs' perceived trust, control and satisfaction. PRACTICE IMPLICATIONS: Patients and GPs should be educated about the possible negative consequences of informal interpreting.


Assuntos
Barreiras de Comunicação , Emigrantes e Imigrantes/psicologia , Clínicos Gerais/psicologia , Multilinguismo , Satisfação Pessoal , Tradução , Confiança , Adulto , Competência Cultural , Feminino , Medicina Geral/organização & administração , Humanos , Idioma , Masculino , Pessoa de Meia-Idade , Países Baixos , Visita a Consultório Médico , Relações Médico-Paciente , Gravação em Fita , Turquia
15.
Ethn Health ; 23(2): 158-173, 2018 02.
Artigo em Inglês | MEDLINE | ID: mdl-27764953

RESUMO

OBJECTIVE: To explore the perspective of Turkish-Dutch general practitioner (GP) patients on informal interpreting from an integrated theory base, focusing on interpreters' roles, trust and power. DESIGN: Semi-structured in depth interviews were conducted with 21 first-generation Turkish-Dutch migrant patients who made use of informal interpreters to communicate with their GPs. An interview guide was designed based on the theoretical framework of interpreter's roles, trust and power, covering questions about interpreters' role, trust in informal/professional interpreters and power division in the medical consultation. The interviews were transcribed verbatim and analyzed according to the constant comparative method. RESULTS: Besides providing linguistic translation, informal interpreters were expected to perform the roles of advocates and caregivers of the patients. Informal interpreters were trusted more than professional interpreters, mainly for fidelity reasons, that is, because the patients assumed that informal interpreters would act in their best interests. Although informal interpreters were often perceived as the primary interlocutor, the patients did not feel dominated by them, but rather empowered by their presence. CONCLUSION: Our findings indicate a connection between the role of the advocate, the fidelity dimension of trust and the perceived empowerment of the patients. By linking interpreters' role to trust and power, this study contributes to theory building in the field of informal interpreting, which is needed to design evidence-based interventions to improve health care delivery to patients with insufficient language ability and thus to advance health care delivery to migrant patients, which is currently lagging behind.


Assuntos
Emigrantes e Imigrantes/psicologia , Etnicidade/psicologia , Medicina Geral/métodos , Relações Médico-Paciente , Tradução , Feminino , Humanos , Pessoa de Meia-Idade , Países Baixos , Poder Psicológico , Confiança , Turquia/etnologia
16.
J Health Commun ; 21(12): 1251-1259, 2016 12.
Artigo em Inglês | MEDLINE | ID: mdl-27869571

RESUMO

Ethnic minority patients are less participative in medical consultations compared to ethnic majority patients. It is thus important to find effective strategies to enhance ethnic minority patients' participation and improve subsequent health outcomes. This study therefore aimed to investigate the relation between the match between patients' preferred and perceived participation and doctor-patient concordance in preferred doctor-patient relationship on patient satisfaction, fulfillment of information needs, and understanding of information among Turkish-Dutch and Dutch patients. Pre- and postconsultation questionnaires were filled out by 136 Dutch and 100 Turkish-Dutch patients in the waiting rooms of 32 general practitioners (GPs). GPs completed a questionnaire too. Results showed that a match between patients' preferred and perceived participation was related to higher patient satisfaction, more fulfillment of information needs, and more understanding of information than a mismatch for both patient groups. For doctor-patient concordance a conditional main effect on all outcome measures emerged only among Turkish-Dutch patients. That is, for patients who were discordant with their GP, higher perceived participation was related to lower satisfaction, worse fulfillment of information needs, and worse understanding of the information. In order to improve medical communication GPs should thus primarily be trained to tailor their communication styles to match patients' preferences for participation.


Assuntos
Etnicidade/psicologia , Comunicação em Saúde , Grupos Minoritários/psicologia , Participação do Paciente/psicologia , Preferência do Paciente/etnologia , Relações Médico-Paciente , Adolescente , Adulto , Idoso , Idoso de 80 Anos ou mais , Etnicidade/estatística & dados numéricos , Feminino , Clínicos Gerais/estatística & dados numéricos , Humanos , Masculino , Pessoa de Meia-Idade , Grupos Minoritários/estatística & dados numéricos , Países Baixos , Satisfação do Paciente/etnologia , Inquéritos e Questionários , Turquia/etnologia , Adulto Jovem
17.
Patient Educ Couns ; 99(6): 981-7, 2016 06.
Artigo em Inglês | MEDLINE | ID: mdl-26792389

RESUMO

OBJECTIVE: To explore differences in perspectives of general practitioners, Turkish-Dutch migrant patients and family interpreters on interpreters' role, power dynamics and trust in interpreted GP consultations. METHODS: 54 semi-structured in-depth interviews were conducted with the three parties focusing on interpreter's role, power and trust in interpreters. RESULTS: In line with family interpreters' perspective, patients expected the interpreters to advocate on their behalf and felt empowered when they did so. GPs, on the contrary, felt annoyed and disempowered when the family interpreters performed the advocacy role. Family interpreters were trusted by patients for their fidelity, that is, patients assumed that family interpreters would act in their best interest. GPs, on the contrary, mistrusted family interpreters when they perceived dishonesty or a lack of competence. CONCLUSION: Opposing views were found between GPs on the one hand and family interpreters and patients on the other hand on interpreter's role, power dynamics and the different dimensions of trust. These opposing perspectives might lead to miscommunication and conflicts between the three interlocutors. PRACTICE IMPLICATIONS: GPs should be educated to become aware of the difficulties of family interpreting, such as conflicting role expectations, and be trained to be able to call on professional interpreters when needed.


Assuntos
Barreiras de Comunicação , Emigrantes e Imigrantes/psicologia , Clínicos Gerais/psicologia , Multilinguismo , Relações Médico-Paciente , Tradução , Adulto , Idoso , Competência Cultural , Feminino , Medicina Geral , Humanos , Entrevistas como Assunto , Idioma , Masculino , Pessoa de Meia-Idade , Visita a Consultório Médico , Pesquisa Qualitativa , Confiança , Turquia
18.
J Health Commun ; 20(8): 910-9, 2015 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-26073918

RESUMO

This study investigates differences between native Dutch and Turkish-Dutch patients with respect to media usage before and patient participation during medical consultations with general practitioners. In addition, the authors assessed the relation between patient participation and communication outcomes. The patients were recruited in the waiting rooms of general practitioners, and 191 patients (117 native Dutch, 74 Turkish-Dutch) completed pre- and postconsultation questionnaires. Of this sample, 120 patients (62.8%; 82 native Dutch, 38 Turkish-Dutch) agreed to have their consultations recorded to measure patient participation. Compared with Turkish-Dutch patients of similar educational levels, results showed that native Dutch patients used different media to search for information, participated to a greater extent during their consultations and were more responsive to their general practitioner. With respect to the Turkish-Dutch patients, media usage was related to increased patient participation, which was correlated with having fewer unfulfilled information needs; however, these relations were not found in the native Dutch patient sample. In conclusion, interventions that enhance participation among ethnic minority patients will better fulfill informational needs when such interventions stimulate information-seeking behavior in that group before a medical consultation.


Assuntos
Comunicação , Clínicos Gerais , Comportamento de Busca de Informação , Meios de Comunicação de Massa/estatística & dados numéricos , Participação do Paciente/psicologia , Relações Médico-Paciente , Adulto , Idoso , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Países Baixos , Participação do Paciente/estatística & dados numéricos , Turquia/etnologia
19.
Patient Educ Couns ; 98(11): 1346-51, 2015 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-26092767

RESUMO

OBJECTIVE: This study compared native-Dutch and Turkish-Dutch patients' expressions of emotional cues/concerns and GPs' responses to these cues/concerns. Relations between patient's cues/concerns and GPs' perceptions of the patient's health complaint were examined too. METHODS: 82 audiotaped encounters with native-Dutch and 38 with Turkish-Dutch GP patients were coded using the VR-CoDES and VR-CoDES-P. Patients filled out a survey before each consultation to assess their cultural identification, Dutch language proficiency and health-related variables. GPs filled out a survey after each consultation to assess their perceptions of the patient's health complaint. RESULTS: Turkish-Dutch patients expressed more cues than native-Dutch patients, which was explained by higher worries about their health and worse perceived general health. GPs responded more often with space-providing responses to Turkish-Dutch patients compared to native-Dutch patients. Turkish-Dutch patients' cue expression strongly influenced GPs' perceptions about the presence of psychosocial problems. CONCLUSION: Migrant patient-related factors influence the amount of emotional cue expression in primary care. GPs perceive these cues as indicating the presence of psychosocial problems and provide space for patients to elaborate on their emotional distress. PRACTICE IMPLICATIONS: GPs should be trained in using more affective communication techniques to enhance elicitation of the underlying reasons for migrant patients' enhanced emotional cue expression.


Assuntos
Comunicação , Sinais (Psicologia) , Cultura , Emoções , Clínicos Gerais , Atenção Primária à Saúde , Adulto , Emigrantes e Imigrantes/psicologia , Feminino , Clínicos Gerais/psicologia , Humanos , Masculino , Pessoa de Meia-Idade , Inquéritos e Questionários , Gravação de Videoteipe
20.
Patient Educ Couns ; 97(1): 23-9, 2014 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-25107514

RESUMO

OBJECTIVE: The aim of this study was to compare patients' expressions of emotional cues and concerns, and GPs' responses during consultations with and without informal interpreters. Furthermore, informal interpreters' expression of emotional cues and concerns and their responses were examined too. METHODS: Twenty-two audiotaped medical encounters with Turkish migrant patients, eleven with and eleven without an informal interpreter, were coded using the Verona Coding Definitions of Emotional Sequences (VR-CoDES) and the Verona Codes for Provider Responses (VR-CoDES-P). RESULTS: In encounters with informal interpreters, patients expressed less emotional concerns than in encounters without informal interpreters. Only half of all patients' cues is being translated by the informal interpreter to the GP. Furthermore, 20% of all cues in encounters with informal interpreters is being expressed by the interpreter, independent of patients' expression of emotions. CONCLUSION: The presence of an informal interpreter decreases the amount of patients' expression of emotional concerns and cues. Furthermore, a substantial amount of cues is being expressed by the informal interpreter, corroborating the often-made observation that they are active participants in triadic medical encounters. PRACTICE IMPLICATIONS: GPs should be trained in communication strategies that enable elicitation of migrant patients' emotions, in particular in encounters with informal interpreters.


Assuntos
Comunicação , Competência Cultural , Emigrantes e Imigrantes/psicologia , Emoções , Clínicos Gerais/psicologia , Idioma , Encaminhamento e Consulta , Adulto , Idoso , Codificação Clínica , Sinais (Psicologia) , Feminino , Medicina Geral , Humanos , Masculino , Pessoa de Meia-Idade , Países Baixos , Fatores Socioeconômicos , Inquéritos e Questionários , Gravação em Fita , Turquia
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